I realize, I’m not so fantastic at this whole blog thing. I get a vibe going and then I fall off. Which isn’t right. Not only does this blog exist to represent a plethora of thyroid cancer knowledge and awareness, it also touches on my experience to all my fellow survivors and recently diagnosed. My intentions are always to engage, inspire, make you laugh, create a blanket of comfort, and to let you know – You are going to be just fine.
This week, I am currently undergoing my yearly cancer screening. This involves thyrogen shots, blood work, a neck ultrasound, a tiny dose of RAI, and of course a full body scan this Friday. I will make sure to write about the whole process. I do have a few really great subjects to touch on next week pertaining to the cost of having a “good kind of cancer” as well as all the pills that have come into my life since being diagnosed.
Stay tuned, Darlings – Keep fighting the good fight!
Now, while I’m about pro level at this microscopic game of thyroid cancer, I still get quite uneasy when I have looming appointments like these approaching. Especially the yearly follow up. These are big time, folks. And I have yet to receive good news, just once. Let me tell you, I f*cking NEED THIS. A break. To regroup and refocus.
April 22 ( Earth Day! ), the last thing I would ever ask for is to unfold out of slumber and head to Desert Radiology for a neck ultrasound. Playing with plants and spending the day outside, enjoying our blue planet sounded more like my cup of tea. But alas, like I mentioned in the *above, sometimes you just have to dive in and be done with it.
Away I went.
Random Side Thought: When fellow patrons in the waiting room hear you called down the ultrasound hallway, I wonder the percentage of people listening assume I must be pregnant. AND, if and when that day ever comes, will I be traumatized by ultrasounds? I mean, seriously. I’ve had about a dozen of them and none came out the way we wanted.
Back the the update.
At this point I know exactly what cancer looks like under ultrasonic frequency. Your lymph nodes appear circular and solid black, traced with a small outline. When cancer shows it’s ugly presence, the best way to describe – Tiny little static within that solid black circle. When mapping for my second surgery, one of the ultra sound techs and the administering doctor, stabbing needles into my neck, showed me the art of death. Now I’m terrified of it. So rather than stare at the screen this time, I opted to shut my eyes and keep breathing. I didn’t as questions like I normally do. I’ve pretty much asked them all. Knowing I had all this other crazy coming up the following week, I decided I’d rather know nothing and hope for the best.
“I said to my soul, be still and wait without hope, for hope would be hope for the wrong thing.” ― T.S. Eliot
OK. I lied. I did peek just once. She was snapping so many images! But I only saw the screen for maybe twenty seconds and to my relief, everything looked normal.
Sunday was all mine. Julian went galavanting with some high school friends, in from Houston and Minnesota. I decided to stay home alone with Frank and just vedge. The only downside was the damn wind we’ve been getting knocked around with here in Las Vegas lately. Any day now it can stop. My allergies are killing me on top of everything else.
Monday kicked off this week with Thyrogen Shot 1 – It stung like a motherf*cker! Tuesday, exactly 24 hours later, ( in my best DJ Khaled voice ) ANOTHA ONE. I’m still wrapping my head around why exactly I paid 2K to get probed with needles. Oh wait, that’s right. Because the alternative is to go off your thyroid meds for three weeks and feel like a pile of brain dead mush that sleeps all the time. That doesn’t fly in the creative entrepreneur club.
Directly after my first injection Monday, I headed downstairs to get my blood drawn for a pregnancy test. No, I am not pregnant, nor are we interested at this point. It was strictly precautionary due to the fact that later today, I’ll be swallowing more radio active iodine in preparation for my i-131 full body scan Friday.
BUT GET THIS. Summerlin Hospital LabCorp lost my blood! And so this morning, when I was suppose to pop that radioactive pill, I got a phone call from Desert Radiology’s Nuclear department. My heart dropped thinking they were about to tell me we had a Lil’ Murr on the way, but low and behold, they called to inform me they could not find my results. Le sigh. Is this really happening? So at 7:30AM today, I raced to another LabCorp to give additional blood for a STAT pregnancy test. Go figure, the first lady poked me TWICE and didn’t get a vein. F*ck. I hate needles already and she was just digging into my arm! After her double fail, a second mam came in to draw. She apologized, she was going to have to go in the same vein that was already bruised from Monday’s lost labs. She got it like a pro, but I was about five seconds from passing out. She yelled for ice and laid me down on the table directly ahead of where I was sitting. What an early morning trip! I promise you I will NOT be paying for this second bill if and when it comes. The worst part of it all? I have to get more labs tomorrow to check my thyroid levels. AHHHHH. I’m going to keep telling myself, the Universe is throwing this all at me to test my ability to stay positive and calm, with results tossing me into my first NED ( no evidence of disease ) category in three years. Pretty, PRETTY, please.
And now I’m writing this while I sit patiently, trying to concentrate on work, and await Keith to call me over to swallow some foreign pill. See, the thing is with these tests, they have to be done in a specific order. Mostly due to the Thyrogen injections. It’s a stressful and daunting runaround. All results should be available by May 3. My appointment with my endo is May 8. I can pick everything up before then, but do I want to? I don’t like my endo enough to wait for her to tell me the verdict. What would you do?
Alright. Time to sign off. Thanks for reading! More from me Friday. We’re halfway there!
The American Cancer Society estimates that there will be about 64,300 new cases of thyroid cancer in the U.S. in 2016. Of these new cases, roughly 49,350 will occur in women and 14,950 in men. In fact, it is the most rapidly increasing cancer diagnosis in the United States, tripling it’s past numbers. And no matter how one may view the survival statistics, each story is different, each experience is hard and I urge you to never consider it a “good cancer.” There are no good cancers.
CHECK YOUR NECK.
What Thyroid? has become my mantra and also the face of my fight against Thyroid Cancer. Brutal honesty, a twist of wit, and paired with the good, the bad, and the ugly, is the way I roll.
With September dedicated to Thyroid Cancer Awareness (are you sick of my posts yet?), I decided to express my personal experience, trauma, positivity, inspiration, and need to feed this creative soul, the best I know how; awareness through design. By this I mean pouring my guts into writing, complimented by these sweet little thyroid lapel pins.
Who says survivors need to rock ribbons or butterflies all the time?!?
SHOW ME YOUR THYROID!
25% of all sales will give back to someone in need of financial help via medical bills, because lovers, this disease is NOT cheap. And with so many outlets donating to research and we have yet to hear of a cure – I’m taking an alternative route for the cause.Here’s to all the fighters and the survivors. The incredibly strong humans who have made it through this long haul. To the doctors and the nurses who have given their best. And here’s to our friends and family, who have supported and loved us endlessly!
Wear this pin with pride.
In the previous post, I tossed out there what a thyroid is (a gland) and what it controls (pretty much everything). What I forgot to mention is what it looks like. Picture two medium filet cuts in the shape of an abstract butterfly, kind of. Great visual, right? I do not suggest looking up Thyroidectomy on YouTube, anytime in your life. I just did.
Nasri, you are a CHAMP! And I can’t believe all that happened to my neck, TWICE.
I’ve been teaching a handful of children as of late, where and what a thyroid is. Of course I don’t go into the gory details of all the possibilities their thyroid’s future may have, but at least they are learning something that I can’t remember hearing about even in high school. Imagine that.
Then I give them a pin and they forget all about what I just said. They rather fight about who gets what color. So there’s that.
Next up! All the pills. Onward!
Hey babes in babes land. Have you ever thought about your life without a thyroid? No? I promise you, without genetics and this soft little gland, your world would be a whole lot different. It’s pretty impressive what that squishy honey does for your bod.
Oh wait. What is a THYROID, you say? I said the same thing once. Over the next handful of days, let me provide you with a little more information. Maybe more than you ever intended on having. But it’s good for you. Like apples, or champagne. Trust me.
Knowledge is power!
Let’s start here ——>
SEPTEMBER is Thyroid Cancer Awareness Month.
Which means someone, somewhere, decided this would be the perfect time of year to take your thyroid into a little more consideration and spread awareness about disease. I think three-hundred and sixty five days, on and off, is cool – But I’ll take whatever I can get.
Someone find me a soap box!
1.a large ductless gland in the neck that secretes hormones regulating growth and development through the rate of metabolism.
a large cartilage of the larynx, a projection of which forms the Adam’s apple in humans.
Thyroid hormones support nearly every body system. In humans and other backboned animals, the iodine-containing hormones guarantee proper development of the brain, skeleton, and organs. Yet, too much or too little derails the body’s delicate balance causing goiter and other health troubles. These distinct regulators work alone or in cooperation with other hormones to generate energy, control cell oxygen use, and moderate many other life processes in both males and females.
Almost all body functions carried out in nearly every tissue rely on thyroid hormones. Their actions and influence are so wide-ranging that vertebrates cannot live without them. Among other things, thyroid hormones specifically affect brain development; heart rate; lung function; blood function; bone growth; steroid hormone production and breakdown; sugar, fat, and protein breakdown; and some immune processes.
Those are just some relatable basics.
OK. Since it’s 2016 and more than half of the world has the attention span of a squirrel, I am going to stop right here. I don’t want to ruin your day with too much reading. I hope you enjoyed Thyroid Topics 101.
Tomorrow, I’ll show you where your thyroid is located even if you already know.
Or decide to look it up on your own. Onward!
I realize, I’m not so fantastic at this whole blog thing. I get a vibe going and then I fall off. Which isn’t right. Because not only does this blog exist to represent a plethora of thyroid cancer awareness knowledge, experience, and reach to all my fellows who are lacking a thyroid; my intention is always, to engage, inspire, question, and provoke hope and insight that the days to come will be brighter for all of us. Whoa. Run on sentence. You get the gist of it.
This past week’s whirlwind of a surprise trip to Minneapolis, surrounded Julian and I with so much love and family. The energy was intoxicating and the conversations were thick. The perfect recipe for times that are meant to be and never forgotten. We crashed and celebrated a party in leu of a beautiful young woman named Carmela, who has climbed to the top of her nest and is about to hit Chicago this fall only to find herself yet again. Even more than she anticipates. She is amazing.
I rested my head softly those two swift nights; in the land of rolling thunderstorms and lush filled days. I couldn’t be happier. The fresh smell of plentiful greens, complimented by my urban instinct of a city dweller; I am home. Surrounded by family, swirling with chatter and positive emotions – It makes one feel whole again. All those voids that have been waiting to be filled are now complete. And as the rain pounded on the roof our last night home, thunder rolling, flashes of natural energy filling the sky; I felt so alive.
Your life and what you put into it, with time, creates a the perfect personal portrait. The need and willingness to grasp and appreciate it all is crucial. My life, with all the good, the bad, and the ugly, is a beautiful dream that I wish to live over and over again.