I realize, I’m not so fantastic at this whole blog thing. I get a vibe going and then I fall off. Which isn’t right. Not only does this blog exist to represent a plethora of thyroid cancer knowledge and awareness, it also touches on my experience to all my fellow survivors and recently diagnosed. My intentions are always to engage, inspire, make you laugh, create a blanket of comfort, and to let you know – You are going to be just fine.
This week, I am currently undergoing my yearly cancer screening. This involves thyrogen shots, blood work, a neck ultrasound, a tiny dose of RAI, and of course a full body scan this Friday. I will make sure to write about the whole process. I do have a few really great subjects to touch on next week pertaining to the cost of having a “good kind of cancer” as well as all the pills that have come into my life since being diagnosed.
Stay tuned, Darlings – Keep fighting the good fight!
I’m going to keep this short and sweet. Today. 11:30AM. Desert Radiology bound for what I thought was just an ultrasound. Just kidding. Tack on another biopsy. Dr. Mecca was out on vacation but for some reason my surgeon didn’t know that…
I didn’t catch today’s doctors name. He was young. He looked like a dear caught in some headlights when he came in; totally not expecting to be performing this lower sternum biopsy. He even admitted that. Stab. Stab. Stab. The numbing hurt like a mofo. After that it was eight different needles worth of uncomfortable pulsing. One literally felt like it hit the back of my throat. That did me in for a jolt. Two hours later – I’m late for my bloodwork appointment all the way across town. My nurse and I quickly faked a “STAT” signature on all my bloodwork forms, she put in a call to Quest, and away I went. I was 15 minutes late. Not bad. I waited another half hour. 10 tubes of blood and almost 18 hours fasting, I was on my way home. No energy to snag that chest x-ray I still need to complete all my pre-op confirmations.
I get home. Ate. Let the cat outside and then settled back in to finish my work up for the day. (Note, I am STILL working and it’s 7PM my local time.) I receive a phone call at 5PM from my regular physician who was concerned about my dangerously low calcium levels. Weird. I feel fine. And how did she get those results so fast?
She then proceeded to ask for my surgeon’s contact information and endocrinologist’s info so she could relay these findings to them on Monday. Until then, she insisted I pick up a prescription she called into the pharmacy for some sort of Calcium pills and urged if I ever felt numb, tingly, or had any muscle spasms to immediately go to the ER. Wow. Totally not what I was expecting. This was already a long enough day as it was. This better not jack up my surgery date.
On the brink of all this crazy, one really fun thing did find itself at my doorstep this evening. An adorable Fall-o-ween care package from Jim and Peggy Murray! Filled to the brim with the most fun things; from candies and cat toys, to hair product samples and so many more bright and colorful things – You two Wisconsinites sure know how to make a gal feel like a kid again! Oh! And speaking of kids. A childhood friend, whom I’ve known since the dawn of kindergarten will be crashing at Casa De La Murr tonight. So excited to have her and her beau stay for the evening!
Stay cozy everyone.
Guilty. I love bacon.
Tuesday night as I laid in bed, unable to sleep at the thought of yesterday morning’s verdict, I predicted to Julian “Tomorrow, the doctor is going to say, ‘All your scans did come back clear, however through further testing with the ultrasound guided biopsy, it looks as though both suspicious lymph nodes did come back positive for cancer.'” I was spot on.
Iodine scan – Clear.
PET/CT – Clear outside of a small glow in my lower left neck.
Ultrasound Biopsy – Both enlarged nodes tested positive for PTC spread in my lower left neck
I inquired, if these were missed during my first surgery or gradually grew? Due to my blood work track record, I was clear after my RAI treatment for a solid year. However, at some point, a few nasty, microscopic cells threw a party and here we are again. My endo is also currently assuming that I am non-avid or resistant to the RAI, which will possibly require further testing after my next surgery at a research facility. I have an appointment scheduled with my surgeon tomorrow afternoon. Dr. Sina Nasri will be performing the procedure once again. They have a terrible website, so maybe we can trade services? I am also being proactive in the sense of scheduling an appointment with my oncologist on Monday to get a second opinion on what I should contemplate after this next surgery, considering my situation is getting a bit more complicated with the reoccurrence.
This has all been a blow to the positivity train I’ve been riding. I feel weird. I’m frustrated. I’m nervous. Why wouldn’t my endo notice my thyroglobulin levels rising way back in March? It’s even obvious to me after sifting through a years worth of blood work results that tumor marker levels were on the rise. I feel like I am starting all over – to an extent. It’s very hard to concentrate on my every day life. There is a new form of numbness to my emotions that I hate. I don’t want to lose my passion. I’m scared, yes. Will this forever keep popping up at the most random times? Totally possible. Thyroid cancer ain’t nothin’ to f*ck with.
Biopsy yesterday morning has left me looking like Dracula swooped in for a quick little snack. Pretty sore. Nothing found on the right side. Two suspicious nodes on the left which they stabbed the sh*t out of and that was that. Results – October 14th. I am happy to say I will have Claud the Broad and Todd in town for the big reveal. I plan to have my Mum-in-Law come to the appointment with me so we can drill this doctor for every piece of information she is worth.